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Ellie's Haven

Ellie's Haven - Ellie Ellie's Haven - Ellie

The main aim of Ellie's Haven is to build a non-medical holiday haven for the children of Devon and Cornwall. A recent study has shown that there is a need for a (non-medical) short break facility in Devon and Cornwall, and Ellie's Haven will be a special place for special children.

Ellie, was born on 25th January 2005, the child of Julie and Nigel Libby. Julie and Nigel had a little boy called Thomas who sadly passed away when he was only fourteen months old. Thomas died of a terminal illness for which there is currently no name but it was a terminal illness believed to be linked with the genetics of both Julie and Nigel. The geneticist believed that if they had a baby girl it was more likely that she would not be similarly affected.

 

Ellie's Haven - Ellie Ellie's Haven - Julie & Ellie
Four years after Thomas' death, Ellie was born. It quickly transpired that she too, had a similar terminal condition.

 

Ellie requires around-the-clock care and suffers from:

 

  • Global developmental delay
  • Laryngomalacia - Ellie has a tube/opening in her throat
  • Feeding difficulties - Ellie is fed solely by tube
  • Vision impairment

 

This really is a cause worth giving to and anyone who would like to make a contribution would be most welcome, click here to visit the Ellie's Haven Website.

The Ellie's Haven website now has pages for each of it's supporters including the saltash.net page, which can be found here;
Ellie's Haven Supporters - saltash.net community school